Laughing one’s heart out is an expression brought to life for Virsaviya Borun whose heart beats outside her body.
Virsaviya Borun was born with her heart misplaced outside the rib cage. She was diagnosed with the Pentalogy of Cantrell, other wise known as the thoraco-abdominal syndrome.
According to doctors, the girl had a pretty short life expectancy. Sufferers of the thoraco-abdominal syndrome die as stillborns or few days after birth. Virsaviya’s mum Dari was repeatedly told by doctors that the disorder will kill her daughter. To the surprise of the world, the young child has celebrated her 7th birthday.
The survivor who bears the biblical name Bathsheba, says she knows the essence of her life and her medical condition.
“I know why I have a heart outside. Because Jesus want to show he can make special things like me.”
The story of the beautiful and charming 7-year old girl was first made public in 2015. A viral video was made as the family sought donations to fund a corrective surgery for Virsaviya.
That same year they moved from Russia to Florida to get the surgery done. Unfortunately, the procedure could not hold because she had issues with her blood pressure.
“It’s not easy for Virsaviya to live with her heart on the outside because it’s really fragile.”
“She has to be careful as of course she can fall and it can be really dangerous – she can die from that.”
Sources say that Virsaviya does not fare well in a cold environment. Thus, early this year, Dari moved with her daughter to Hollywood for its warm climate.
Since she lacks chest bones, her heart is protected by a thin layer of abdominal skin. As much as they try to be cautious with the condition Dari is certain that her daughter’s record breaking survival is attributed to God.
A day ago, another video of the young girl which lasted for few seconds surged up again. As she giggled the heart could be seen protracting from her chest.
The video did not however contain latest updates on the girl’s medical condition.
What To Know About Pentalogy of Cantrell Or The Thoraco-abdominal Syndrome.
Pentalogy of Cantrell is a rare congenital disorder and a combination of birth defects. The cause is still unknown.
As seen with Virsaviya Borun the heart is only protected by a thin layer of skin.
Web Med states that Pentalogy of Cantrell causes defects in the breastbone (sternum), the muscle that separates the chest cavity from the abdomen and aids in breathing (diaphragm), the thin membrane that lines the heart(pericardium), the abdominal wall, and the heart.
The severity of the condition which varies from person to person can either be complete or incomplete. When all five defects are present, it is complete, if not is known as incomplete.
Pentalogy of Cantrell is most dangerous when there is ectopia cordis. This is when the heart is completely or partially displaced outside the chest.
The syndrome is very uncommon with a prevalence rate of 1 in every 1 million.